What I feel is the truth of my experience whether I have dementia or not… “Forget about the disease. Look at the person as if there is no disease first and ask yourself, what is going on for that person? What might they be experiencing and feeling as any person would? Then look at how the disease might complicate that experience for the person. That is when you can truly help. When you are seeing the person before the disease, you are considering who they are first and their experience of their life as it is for them now in the moment.” – Sarah Bucklar.
What does it mean to live well with dementia? Do you feel as though you are supported and have access to the information you require? Do you feel able to live your life the way you choose? To retain, maintain and create relationships? To be able to explore new aspects of yourself and to have the support and understanding to deal with aspects of yourself that no longer resonate with you? To have a level of wellbeing that fulfills you? To direct your care, to be heard, listened to and valued as the person you are in any moment? To have the opportunity to continue to grow and the freedom to move through the complex feelings associated with life with dementia and for those supporting you to have the same opportunities, support and understanding? Perhaps the foundational feature to living well with dementia is feeling as though you have not lost your voice? What we have asked here are some of the things people living with dementia have expressed to us as needing to live well with dementia.
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